There has been quite a gap since I last blogged. I have no excuse except Life. And let’s be honest, Life is a pretty
darn good excuse. And yet while
I’m busy Living, when I was recently asked what I would do if I had more "me" time,
“write” was near the top of my list.
And so I did some soul searching in the form of comparing my blog
history and dates, and found the clear-cut reason why I haven’t written
regularly in awhile. Ready? The meals stopped. Yup, that’s right. After somewhere around 88 meals, I was
left to fend for myself. I know,
right? You’re thinking it,
too. How horrible that I had to
actually begin cooking for my own family again. The nerve!
It’s true. The calendar
confirms. I started “slowing down”
my blogging right around the time the meals stopped. So, you know.
There’s a big learning here.
A huge bottom line: I’m clearly a low-functioning hot mess. I mean, 88 meals. EIGHTY EIGHT. (approximately)
We have been loved on and provided for beyond what we deserve. To say we are humbled is an
understatement. In October it was
a pumpkin patch. In November it
was anonymous gifts signed “Jesus Loves You!” December was a “Secret Santa.” Every week of every month has left us drowning in God’s
faithfulness. Our children have
seen thoughtfulness and generosity expressed in beautiful ways. They will be forever changed. We all will. So is it with severe sarcasm that that I wrote the
above? Yes. But am I super bummed about my lack
of writing and am I really a low-functioning hot mess? Well, yes. That part is true.
I still have not mastered Life. My kids need haircuts.
My laundry isn’t done. My 14 month old still hasn't had her 12 month check up. I
haven’t found the key to carving out time to write in the midst of it all. But I trod along. I am here. Today. And I
hope to be here again in a few days.
And a few more after that.
All that to say, I have some updates and some prayer
requests!!!!
(If we are Facebook friends, you will know some of these
already. But I’ll post them here,
just to make sure we all are on the same page!)
1) Jon started back at work! He is working part time – 20 hours/week
and is loving being back! He will
be the first to say that heading back to work sounded like a “treat” after
being at home for so long with 4 kids. :) (I’m pretty sure he has a new respect
for my "job" at home.) ;)
Jon has a new role at work right
now. He is not yet able to jump
back into his role as Worship Pastor because of his eye pain. Some days (like the past 3 days in a row!), he wakes up and
his eye is SO painful. He has a
hard time functioning and has to manually hold it closed etc.. If that were to happen on a Sunday
morning, the church would be in a tough spot. He couldn’t necessarily “call in sick” to the morning
services. So because his health is
“unpredictable” and “unreliable” it’s not wise for him to jump back into that
role. With being permanently deaf
in his right ear now, Jon also needs to be careful to preserve his one working
ear. It’s a tricky new
normal. So Jon is currently overseeing
Outreach at the church. And he is
LOVING it. If you know Jon, you
know outreach is something he is passionate about and you’d agree this role is
a fantastic fit. There are times he
comes home with his tank totally filled up. And there are times he comes home absolutely exhausted. He often comes home with his eye just
worn out. But he loves being ‘back
in the game.’ :)
I really can’t talk about Jon’s
work without sharing how AMAZING they have been through this whole journey. Jon has been on staff at Mariners
Church for 4 ½ years now and he is such a different person today than the day
he started there. Mariners has
provided such a beautiful place for him to grow, learn, be stretched… And
through this experience, we have seen how Mariners loves. And it has been overwhelming. Since the day of Jon’s surgery, and for
his entire 4 months off of work, the staff donated vacation days to help cover
the remainder of Jon’s salary after disability. Yes, this incredible staff gave up their most precious thing
– their vacation days/the time they have off with family and friends – to
provide time for Jon to stay home and heal. What
a gift! Talk about
humbling!!! Jon and I have been
blown away by this beautifully generous community we get to serve with. Wow!
2) Jon got his drivers license back!!! Yes, after 5 months of being his
chauffer, my title has been stripped!
;) Jon had to jump through
many hoops and tests to get it back, but he did it!!! The other day, we picked the kids up at school and Jackson
was just in shock. “Dad! You’re driving!” he yelled, as he
approached our van. It was a great
milestone we got to celebrate as a family.
3) ( WARNING: This one is BIG! Ready? Are you sitting down?
Seriously. Sit. OK.)
JON’S FACE MOVED!!!!!! Yes, the right side of his face! The side that has been paralyzed with
NO movement!!! The side that has
been without movement or any life for 5 MONTHS and 8 DAYS! THAT side of his face moved! This is what we have prayed about since
the day of his surgery on October 3!
The doctors had said that there was a 50% chance Jon would be left with life long facial paralysis. And they said if his face were to have movement again, it
would most likely begin to happen in the first 6 months after surgery. So you can imagine after we hit the 5
month mark, we had to fight hard to not lose hope. We were at Jackson's baseball game last week when Jon turned to me and said he thought he felt something move on his face. When I saw it, I almost couldn’t believe it. We were ECSTATIC! I immediately grabbed my phone to capture the miracle on video. I'll post it below. :) Now let me warn you. It is teeny
tiny movement. I mean, some people have watched it on a giant screen, with a magnifying glass, and still can't see it. But trust me. It moved. :) The reality is, movement is
movement. Movement means that the facial nerve IS in fact in tact! And there IS in fact life in the
nerve! The potential is HUGE. The possibilities are endless! Are you squealing with excitement at
God’s goodness with us? Are you
dying to see it with your own eyes??
;) Here’s the video of the first sign of movement....
So of course a HUGE, ENERGENTIC, PASSIONATE “Happy
Dance” is definitely in order!!!
THANK YOU for celebrating alongside us! Thank you for praying for us! Thank you for believing with us! We are grateful!
We would love for you to continue praying with us! Here is the biggest thing
on the horizon:
*Jon’s 6 month MRI is THIS MONDAY, March 24th
at 8:00pm. (well, about 10
days shy of 6 moths.) His
neurosurgeon successfully remeoved 95-97% of Jon’s tumor. Our prayer is that the remaining 3-5%
is exactly that – still at the 3-5% size.
Better yet, let’s pray that it’s gone! :) What we do not want to see, is any
growth. If the tumor has grown,
Jon will have to start Radiation.
Would you pray with us that Jon would not need Radiation? Would you pray that the tumor has not
grown at all? We have an
appointment with Jon’s neurosurgeon on Thursday at 2:45pm to get the
results. I will keep you posted!
Thank you for continuing to walk this road
with us. You have no idea the
comfort that comes in knowing we are not alone – but are surrounded by
incredible men and women who love us and care enough to pray for our
needs. We love you and thank Jesus
for you!
HB Mariners is still on the path of continued Prayer. Gods glory to Jon is amazing with what I just saw on video. I did see the movement. Bless all of you and we will continue to pray
ReplyDeleteM. Goldstein
Ever praying for you and your precious family, Deanna. How incredibly exciting to see movement!!! My heart goes out to you in your joy over the successes and in your pain over dealing with the 'what-if's' and the 'different'. We'll continue to lift you up to the Almighty...praying for healing, comfort, and reassurance. Love to you all.
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